So I've come a long way since last I posted: 1) hired an elder law attorney to handle dad's finances and options for moving out of his apartment to AL, and 2) started the process of looking at Assisted Living Facilities. The law firm recommended 3 that would be in line with dad's finances of SSA/VA benefits. The problem is I've visited 2 of them and find them so darn depressing that I cannot even picture my father living there. They were both clean but both reminded me of an institution. The second one I visitied I noticed all the residents seemed "out of it" or grumpy. I have one more to go but I am already disheartened that my dad will absolutely hate being in one of these places.
And what is with the infantilizing residents with all the childish games/activities? My dad is a total introvert so forget about engaging in any of that stuff - but can't say I would blame him. Also, he is of completely sound mind which really makes me wonder how he would do in an ALF.
Just venting and wondering if anybody thought the same about these places? It just seems to me that these places are god's (or whatever) waiting room. Thanks for the mini-rant.
Check for a place that has independent and assisted living, ideally that can transition into a (separate but located in the same complex ) memory care . Their residents will probably be more independent. And he won’t have to move when his condition worsens ( our newbie mistake was the first was strictly independent living) Talk to the staff and see what their philosophy is. Who comes first the resident or the staff? I don’t know where you live but we managed to find two very nice places for my mother. We visited every single one in the area so you need to do your homework. We chose the places with the most homelike atmosphere and the most caring staff. Check resident to staff ratio. It should be much higher than legal requirements. Some areas grade facilities or have online reviews although one I noticed had 90% of reviews by staff so check for actual family and resident reviews. It was recommended by the hospital for rehab and was one of the worst imo, very poor communication with family even though it was obvious my mother was hallucinating and out of it. Most newer facilities in my area are set up as apartments with your own furniture so you have a lot of say on how pleasant it is.
Activities for residents vary with their abilities and tastes. As Certified Activity Director, I had to provide residents with a variety of choices. Bingo was the most universally favorite activity.(I don't like it, but most residents do). If you look in most communities, there are a lot of Bingo games available to the non-institutionalized! Must be something that appeals to people! All-in-all, I'd say AL pretty nice. But costly. Where I live 3K/monthly on low end. Some AL upward from 6K to over 10K!
My Gram lived in a place that had all 3 levels - independent living, assisted living, and total care on the same campus. She had a nice mini apartment for most of her life there, a beautiful dining room/activity room, and she worked as a receptionist in one of the buildings. There are nice places out there!
Mjlarkan also makes a valid point about how the character of a place can change depending on the people living there. I have seen that changes in staff can have a huge effect as well, some people are more capable than others and spend time away from work learning and planning, some go above and beyond while others just put in their 8 hours and hurry out the door.
Just make sure you like the nurses & aides, cuz they're the ones who will spend the most time looking after your dad. But remember, residents do die there, (natural causes of age)
Start with alleviating some of your stress/running around. You say "Now I pitch in with shopping, bill paying, running errands, but it's difficult as he does not live around the corner from me..." While working, this will take a toll on you!
* Have his bills sent to you (or a PO Box.) Most places will change billing address without providing any kind of POA. They don't care where the bills go, so long as they get paid!
* Hopefully you have POA so you can access his assets. Technically if you are using his SS (only source of income) you should apply to be his rep payee. It requires making an appointment with a local SS office and filing and reporting yearly how the funds are used (no charge to do this and funds are used only for his benefit.) Once approved, they send the first payment as a check to you - you will need to set up a special rep payee account for that which only you can access and then can request electronic deposits. From there, you can set up all the accounts to be paid and when the bills arrive, schedule payments from the bill payer system. This is nice because you only have to set them up once and then just schedule payments - no more running to PO for stamps!
* For shopping and errands, try to consolidate them as best you can. There will always be times when an additional trip out is needed, but if you plan ahead, it saves time and gas money! I do this for myself, whenever possible.
The simple answer to your primary question is no, they are not all the same. There are those for profit, non-profit, VA, etc. Accommodations and services as well as cost and the residents can vary considerably and certainly will from one area of the country to another, sometimes even within a state. His limited income is likely limiting the choices, but although "The law firm recommended 3 that would be in line with dad's finances of SSA/VA benefits.", you can look around to see if there are others. As many have indicated, there are nice places and there are crappy ones. You might even want to recheck the ones you did already, as maybe it was an "off" day. Hopefully you know how much the SS/VA total is, so that you can check with prices on other places. The ones they suggested might have some kickback...
Mom's place is a combination IL/AL/MC and one has to go through the reception/dining areas to get to the elevator to MC. I have met and chatted with many residents who are from AL and/or IL. Most are quite pleasant and seem relatively happy. Most in the MC are also relatively happy (some who have regressed a lot may not seem to be, but there's a number of fairly cheerful people in her area!)
(TBC...)
Check out https://dailycaring.com/senior-housing-options-overview/ for the various options in "senior" living.
The ones you say are "...way out of budget. $135K entrance fee; $8K/month..." are 'Continuing Care Retirement Community' residences. The AL places mom used to check out in her area were mostly this type. I often wondered why the big up front cost when none of it is used for the huge monthly fee! I still don't know what they do with that money, but would NEVER consider one of them. Sure, they plan to keep you to the end (no need to move facility when moving to MC and/or NH), but still!!! Many ALs has a MC wing, so that eliminates moving to a new facility.
Regular AL should not have that kind of fee, just a monthly fee. They may require a deposit, it varies from one place to another. The costs vary as do the services included. We looked into 3 places. One was a no go from the first viewing. The first place we looked at was newly opened and nice, but quite a bit more expensive and farther for me to travel to (close to YB's place, but he is/was working still and I handle/manage most everything, so between cost and convenience for me, I was not in favor of that place.) The place we decided on is about 10-15 minutes for me and after 2.5+ years is STILL less per month (~8K) than that first place was (that also was the cost of a shared space at that time, likely more $ now, 2 BR with shared bath, no way mom would like that!) The place we selected wasn't even open yet (old facility was torn down and rebuilt), so we couldn't "view" it, but we're happy with the place. OB is in the south and looked at a place there (ours is non-profit, his was for profit) and he questioned why so expensive here when his was only 3k/m for MC. I looked into it - that was the base price only and everything else was ala carte (meals, laundry, cleaning, etc.), plus the reviews I read were pretty negative.
Being in NJ, I suspect your AL costs will be a bit more than here in the NE (one web site shows it to be about $400/m more.) Some people prefer the Residential Care Homes, smaller home-like places which they say are sometimes less expensive than traditional ALs. I suspect facilities that have IL, AL and MC are subsidized a bit by having the levels of care in one place. VA facilities may be more like NHs, thus maybe not so homey or hotel-like, but should be less expensive.
If his income is limited and he has no assets, is it possible for him to qualify for Medicaid and have in-home services instead of moving (I have read this is an option, staying in the home and getting care rather than going to a Medicaid facility.) Is he a renter or does he own his own place? If he owns a home and can sell it, the proceeds can be used to private pay until the funds are used up, then he might qualify for Medicaid (choose the place wisely then, so to make the transition easier.)
If it has to be a facility, I would choose between AL and Residential Care home.
Check this site:
https://www.assistedlivingfacilities.org/directory/nj/
This page shows average cost of AL for the surrounding states.
I plugged in zip for your location, selected "Standard" and Continue. While this brings you to a page to request help, don't enter anything! Below that is a link to show you the facilities. Click that link and it lists 100 places within 12 miles. I would start by checking the web sites and calling before visiting 100 places! Eliminate those that are too expensive right away! Find the ones he might be able to afford and check the website carefully. Take notes, call and ask many questions, THEN narrow it down and visit some of the places.
PS - Even before checking/clicking the places listed, they each have a list of services - those in green are available and I see some Medicaid ones.
PPS It appears this site is geared to helping you find a place - I wouldn't enter any info into the panels offered, just check what is offered, check the places.
But everyone of the places were shameful. My father was in a so called Dementia Care facility. Some of the staff never heard of dementia let alone be trained. And he paid out pocket for his little awful, depressing room!!!!
Just wanted to add that I would never Have placed him there. Wanted to keep him in his home and take care of him. My sister had POA. Put him there while I was at work. Then threw the key away. Sorry to say he fell three times that I know. Broke his neck in three places, told them but no incident report was done. Had surgery and died in that horrid place. Begged to take him home and she said No.
Prayers and blessings to you in your decisions.