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After 2 years of struggling to care for my husband as he became progressively weaker, refused to perform simple exercises given by his Neuro NP, my husband became unable to get himself up to a standing position. I am in year 3 of a 3-5 year life expectancy with blood cancer, am 82 and now seeing a cardiologist. Between responsibility for him, me, a house and all that goes with these things, I’m exhausted and warned him that by not trying to keep some strength, the day would come I couldn’t care for him. That day came. After calling the FD 10 days in a row to get him out of his lazyboy and into the bedroom, I arranged Skilled Nursing in the facility he would go for 5 days of Respite every 9 weeks. He’s not happy and calls wanting to come home. I tell him it is under his control and give him a simple excercise to begin with. From the side of his bed and using his walker, stand and sit 3x. Do this 3x a day to start. He won’t do it. I’m crying off and on throughout the day feeling so pressured and knowing I cannot care for him, won’t care for him if he won’t try to help just that little bit to regain some mobility.i just don’t know to handle my feelings of guilt and having to keep telling him he can’t come home until he gets some strength so I don’t risk my own health. He seems completely oblivious to my health issues and the exhausting work it is to be the only person caring for him FT along with everything else. It breaks my heart when he calls and asks if I’m coming to take him home. Even if he is “working” me it is so painful telling him he can’t come home until he regains some strength, which he is obviously not going to do. Has anyone dealt with this? Do I just keep telling him no?
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How heartbreaking, but I don’t see how you can realistically be a full-time caregiver at this point. Of course you love him and wish it were otherwise, but I agree with others here that he is where he needs to be.

All the best to you both.
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Reply to SnoopyLove
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He’s proven the exercises and strengthening are not going to happen. It doesn’t matter why, he may not accept truth, but you can. No need to discuss exercises or coming home with him anymore. Answer far less of the calls. The facility will let you know of anything important. Visit regularly and be encouraging. Talk about positive things only. Most importantly, take care of yourself, you matter. I wish you rest and peace
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Reply to Daughterof1930
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Yes, you keep telling him no, and keep repeating the conditions for him to come home. Are you saying that he is only there for 5 days, then back home again?
How can you possibly manage him for 9 weeks back at home?
If he fails to get stronger, is he going to remain in the skilled nursing long term?

I'm so sorry for how this makes you feel. I know it is not easy for you, and it's heartbreaking not being able to have him home again. But, realistically, you simply can not take care of his needs if he can not stand on his own. All you can do is remind him of that reality when he asks you to come and get him and take him home.
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Reply to CaringWifeAZ
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I'm so very sorry for your situation. And no, he can't come home. Sometimes we have to make heartbreaking decisions, and this is one of them.

He won't be happy no matter what happens. Keep that in mind, and save yourself. You've done the best you could, and nobody could have done it better.

As for telling him to do exercises, he no longer understands what you want or need, nor does he care. You're holding onto a false hope, sad to say. If you could accept where he is now in his health situation, if you could realign your thoughts to "he will never be able to come home" so you won't constantly be faced with disappointment because he doesn't care, you might start to feel better. You might need to consult with a licensed counselor to learn how to do that.

Please stop taking all his calls. That's not helping either of you. I wish you peace in your heart as you come to grips with all of it.
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Reply to Fawnby
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Let the calls go to voice mail or better yet, silence your phone. You have serious health issues at stake here and this man won't or can't even do simple strengthening exercises. It's time to take care of YOU now. Speak to him once a day on the phone if necessary, and keep repeating what you've been saying. Don't heap guilt on yourself too.
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Reply to lealonnie1
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