Update on mom in assisted living. I had a hard time convincing my mom to go to assisted living. She was diagnosed with dementia 2 years ago and she couldn't stay alone anymore. I work, have a family she kept wanting them to leave. In March, she went to assisted living. I go twice a week and at first called her every night. I now only call three times a week because she is so negative I cannot take it anymore. When I go to do her hair, she constantly complains. She complains how I do her hair, about the place, about the people, about everything. She keeps asking me "could you live here?" Actually yes. It is brand new, wonderful people and great food. I worn out with the negativity. I have explained to her about her complaints, but she says I am "fussing" at her. Not true, just need some peace. Is it normal for a dementia patient be so negative? I do not want to go visit or call her. It would be so easy to just stop. I am an only child and feel obligated to help her. I feel so much better knowing she is safe and well cared for. She will not bathe or change her pajamas. She doesn't want to get her clothes on. She just wants to complain. She tells me she doesn't eat there, but they tell me different. Her memory isn;t so much the issue, it is her personality change, her inability to care for herself, and her reasoning skills are gone. Oh my, you cannot reason with her at all. When she truly believes something..well, she will say.."well, you are always right and want to argue with me." I want to walk away and enjoy my life without her in it, but I feel guilty for even thinking such a thing. Is all this normal?
My sister who is a geriatric nurse practitioner, said she learned in her education that a whatever trait a person had when younger will only intensify when they are older. Hence, so many negative parents become even more so and especially with dementia when the "filter" is gone. So if this experience with my dad has taught me nothing, it's taught me to take a good hard look at myself and how I interact with others and the world. I believe I learned some of his traits early when I was a child and I'm working hard on myself to feel gratitude rather than complaints. Research does show it helps in aging well. So I am actually grateful that he's moved here…I might not ever have noticed this in myself.
It feels so good to write it, I just need to believe it. The filter is definitely gone...she didn't have much of one to start with, but now, shew she even says the most terrible things to my son. She says he is spoiled right to him, something she would have never done. If he is on his phone when we go visit, she always makes a comment about it. But doesn't say too much to my daughter, just him. I finally don't make them go anymore. My mom will say, my grandchildren never come anymore, I just say they are busy. I do not go in to detail about how she is mean to them. I am ready for the beach or somewhere far away for a while. My husband and I went away in the fall for our anniversary and she threw a fit. She didn't like it one bit. I heard about it for days.
not get any worse it does. She is angry a lot, and has desire to have me have
any kind f life. I have found that at times she is aware of what she is saying, and when I leave the room when she gets too mean, she at times will come in
and apalogize. They will say thay have not eaten, been out etc... even though
they have. Your family needs to be taken care of, as well as you. JUST knowing
she is safe, eats, and is kept clean, is important, and also realize she will forget
when you have been there, try to keep in touch with one of the caregivers at the facility, to find out how she is really doing, most of the information has to be documented. Also, it may be time for a memory facility, rather than assisted living, if that is where she still is. They have better programs, and documentation than assisted living facilites.
kazzaa - sadly, it will only get worse... (((((hugs)))) to you too
kazzaa--yes, unfortunately, it will probably get worse. I have said the same thing, I want to run away and yes, I feel guilty for thinking it--but one day, we will get peace. I do feel guilty for wanting to be able to enjoy my life, but I know that is what we are supposed to do. Life is way too short for all this misery. My mom doesn't understand why everyone around her isn't as miserable as she is. Today while doing her hair one of the ladies stopped by the salon and talked to us. Before she entered the door my mom said, "oh lord, here she comes". Dreaded for the nice lady to stop in (even though she tells me no one talks to her, not true). The lady is 84 a retired teacher and full of life--i just love to talk to her (we have teaching in common) her hands are crippled with arthritis and she still tries to paint. She talks with a shaky voice and sounds just like Audrey Hepburn--love it. She was sharing some stories and my mom tried to stay focused and seem interested (believe me, it was great to have someone else in the room). After she left, my mom said, "how does she walk and how does she get dressed with her hands like that?" How does she get up and going? My mom just doesn't understand why this lady doesn't just complain like she does. Grant it, this lady doesn't have dementia. She just doesn't want to live alone and loves the AL facility. Something my mom said today that has kind of disturbed me though. I don't really know what to make of it. Maybe you can give me some insight. She started crying (as usual) and said, "all I have thought about is dead people". when I asked her what she meant/to explain it she just repeated herself, "I am thinking of dead people". Her mother died at 90 in October and I asked her if it was mamaw. She began to tell me of a lady she worked with years ago, and other people I hadn't heard of before. then she did say she keeps seeing my grandmother in the casket..grant it, a few weeks ago she couldn't remember going to the funeral and would cry that she didn't go. I am confused and have not heard of someone thinking of "dead"people.
I have wanted to run away often, and don't feel guilty about feeling that way. Who would want to do what we do? I have also cut contact or reduced contact a few times for my own survival. Isn't it wonderful talking with "nice" older people? I enjoy it. Mother has been self centered all her life and sounds like your mum had been too.
Reading on the site it seems that those with Alz do relate to dead people - talk about them, "see" them. I think it is part of the disease. I wouldn't worry about it. It is inevitable that your mum will progress through the disease, as it is with my mum with vascular dementia. New behaviours indicate that the disease is progressing, which it will. It is sad and we need to grieve the little losses. Your mum sounds depressed. Is she on any antidepressant? It is possible that she is realising that she is declining, and that she is closer to the end of her life, as all of us are every day, but when you have a disease like Alz it stares you in the face, I would think. I remember when my father was early in vascular dementia. He was concerned that all of us would be OK when he passed. It was almost easier once he did not realise what was happening to him
knows enough to know something isn't right. Being that she is 69, I know we can go through this a long time. I am slowly trying to back away. I am an only child it makes it hard, but it seems some have sisters that won't even help. I believe I would get a caregiver to come in and help out. If there is any money to do this with, absolutely do it. You need a break! It is hard to take a break, believe me, but getting away is very necessary. I cannot imagine living with my mom all the time. I thought about it, but doctors talked me out of it. Smart move. My mom also is paranoid that we are always talking about her. So, yes, once again I feel guilty talking about it on here. But I know she doesn't know.
I saw a 90 year old Indian mother of a friend of mine. She as visiting from India. She was so frail in ther white sari and held a bright red rose in her knarled hands.
She and I were with a group of devotees who were there to commemorate Paramahansa's visit to Newburyport in the 1920s. We each had a rose to toss in the ocean to remember this great master. The elderly woman turned to me and said softly, "Pray for peace. Peace for the world." That's the kind of elderly person I want to be.