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I switched my mom to a pallative care model. Intellectually I know its the right thing to do at her advanced stage and stopping Mementine is common. She was like a car with an 8 cylinder engine with only one cyclinder working. We took her off the drug and now 3 weeks later her memory is a little worse. It could very likely be the Mementine. Naturally I'm second guessing this a little, to continue the car analogy do you continue to do tune ups on a car with only one cylinder out of eight firing?
The drug wasn't curing her and she was getting worse regardless, but the other day she stopped recognizing my brother as her son but as her friend. That said, even with the drug she was having that same issue with me.
For those that got to this stage, did you stop the drug or continue? I'm also of the opinion that she's suffering from the disease and her wishes were not to prolong it.

Let it go. The drug wasn't helping much anyway. I think these drugs are largely worthless in the late stages and that doctors prescribe them so that the family can feel that they are actually doing something to help.

I think palliative care at this point is the right thing to do. It is time to help her by not prolonging her misery.
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Reply to Hothouseflower
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The kicker is ... you do not know if the decline was due to taking her off the drug OR if she would have declined the same while on the drug.
I think at the later stages the drugs do little but there are some that there is a noticeable decline, or a change in personality. I think if the change is adversely effecting anyone then going back on the drug is a valid option.
She will decline with or without the medication. How fast the decline would be you will neve know.
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Reply to Grandma1954
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Let it go . You said she was getting worse regardless . It’s a coincidence that she stopped recognizing your brother after stopping the med . She had already been having the same problem with you while on the med, the med is no longer working.
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Reply to waytomisery
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