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I guess I'm a weirdo. I've never felt it necessary to give it a name . . . And truth be told, I'm not at all sure doctors really know for sure.. Either is devastating. I wish ya'all well.
There are about 50 different kinds of dementia. The most common one is Alzheimer's -- possibly as many as 60% of all dementia patients have Alzhiemer's.
The second most common is a group of dementias known as Lewy Body Dementia. Possibly 20% of dementia patients have that. (My husband did.)
Then there are other fairly commons ones, like Vascular dementia, and frontotemporal dementia. And there are dozens of them you may never have heard of unless someone who know has been diagnosed with one.
Do you need to know what kind of dementia your stepdad has? The first things I'd ask is how old is her and how managed are his symptoms? My husband was in his 70s when he displayed out-of-control symptoms. It was very helpful -- critical, really -- to have an accurate diagnosis of the kind of dementia he had. His treatment plan was developed and monitored by an expert in that field.
My mother started to show dementia symptoms in her late 80s. Now 95 she is in a Nursing Home. We don't know what kind of dementia she has. I know it isn't LBD and I'm pretty sure it isn't ALZ. She is being well cared-for, she is comfortable, and doesn't have behavioral problems. Her family and her doctor don't think it would be useful to know the exact kind she has.
So, tell us more about your stepdad. Is he living alone? With family? At a care center? Is he relatively young or quite elderly? What would be different for him and for you if you knew what kind of dementia he has?
(This may seem odd, but one of the big benefits of knowing what my husband had was for me to join an online group and a local group of caregivers who were dealing with the same issues I was!)
Also know that most kinds of dementia can only be tentatively identified before autopsy. My husband's diagnosis was confirmed after he died. but many people are diagnosed with one kind of dementia and an autopsy shows that was incorrect and they had another type.
I think it will be increasingly important to distinguish what kind of dementia someone has when we have more treatment options aimed at specific brain defects. Right now, even if you know the exact kind of dementia, mostly all that can be done is treat the symptoms anyway.
Right now, identifying LBD might be worth the extra tests and care since there are some drugs that can make that condition worse and anyone suspected of that kind of dementia should avoid those!
My dad has always refused any discussion or testing for alz and dementia. His doc says he has the classic symptoms of alz. I've learned how to deal with him from participating in this website, and also have taken a couple classes.
In our case it's not that important to know exactly what the diagnosis is. Mom and I learn to deal with each new aspect of his dementia as it progresses. We avoid arguing with him and constantly correcting him. We try not to hurt his feelings and make him feel useful.
Thanks Jeanne. My stepdad is 86, resides in an Alz facility. He regularly tosses rooms, flips Furniture then loses his balance and goes to ER because he says he bumped his head. My mom and I go there, transport him back. My fear is that he will really hurt himself or worse hurt someone else. This man was one of the kindest, religious, helpful person I k ow (pretty boring overall). Meds calm him for a couple hours, then he's up and very 'busy'. Next wk we see a neurologist but I'm not even sure what questions to ask. Any input would be appreciated. Is there some type of scan that can assist in determining what Medici e may calm him down without making him so doped that it causes falls?
Ask the doctor about the possibility of placing your stepdad in a lockdown psychiatric hospital to level out his drugs. That's what they did with dad and it helped a lot. He was in there for about 2-3 weeks and we were able to visit him. It's been a few years so I don't remember the details exactly and I wasn't the one taking care of the admission. I remember that he went in through the ER of the local hospital, that's the way they said do it. Anyway, while there they tried different combinations of drugs and the side effects and came up with a plan that allowed him to be calmer without being overmedicated.
we have an appt appt with the HMO's GP in an effort to be referred to a behavioral health center for evaluation. his activities have escalated to hitting staff, we're now paying for an outside aide to distract/shadow him. if referral isn't done, not sure what our next step is. since prayers aren't working, pls wish us luck!
I'm glad you are able to get him evaluated. Maybe they can help him. Like I said, it was a Godsend for Dad and he was to the point of really hurting Mom, hitting, kicking, getting in her face and yelling. And say stuff that was just rude, he lost his filter. Before, he was a lot like your dad, helpful to the family and neighbors, very religious, would give you the shirt off his back if you needed it. He also, as his dementia progressed, needed to be busy. We fixed up a tub of toys and gadgets for him to mess with and he loved old western movies. He had a tool shed and he would sit out there and sort nuts and bolts and nails and stuff into jars and cans. He loved garage sales so he could buy more stuff to mess with.
I do wish you luck and will keep you in our prayers anyway.
By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington.
Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services.
APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid.
We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour.
APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
IV. No Obligation or Commitment.
You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints.
Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights.
APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.
I agree that:
A.
I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information").
B.
APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink.
C.
APFM may send all communications to me electronically via e-mail or by access to an APFM web site.
D.
If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records.
E.
This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year.
F.
You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
The second most common is a group of dementias known as Lewy Body Dementia. Possibly 20% of dementia patients have that. (My husband did.)
Then there are other fairly commons ones, like Vascular dementia, and frontotemporal dementia. And there are dozens of them you may never have heard of unless someone who know has been diagnosed with one.
Do you need to know what kind of dementia your stepdad has? The first things I'd ask is how old is her and how managed are his symptoms? My husband was in his 70s when he displayed out-of-control symptoms. It was very helpful -- critical, really -- to have an accurate diagnosis of the kind of dementia he had. His treatment plan was developed and monitored by an expert in that field.
My mother started to show dementia symptoms in her late 80s. Now 95 she is in a Nursing Home. We don't know what kind of dementia she has. I know it isn't LBD and I'm pretty sure it isn't ALZ. She is being well cared-for, she is comfortable, and doesn't have behavioral problems. Her family and her doctor don't think it would be useful to know the exact kind she has.
So, tell us more about your stepdad. Is he living alone? With family? At a care center? Is he relatively young or quite elderly? What would be different for him and for you if you knew what kind of dementia he has?
(This may seem odd, but one of the big benefits of knowing what my husband had was for me to join an online group and a local group of caregivers who were dealing with the same issues I was!)
Also know that most kinds of dementia can only be tentatively identified before autopsy. My husband's diagnosis was confirmed after he died. but many people are diagnosed with one kind of dementia and an autopsy shows that was incorrect and they had another type.
Right now, identifying LBD might be worth the extra tests and care since there are some drugs that can make that condition worse and anyone suspected of that kind of dementia should avoid those!
In our case it's not that important to know exactly what the diagnosis is. Mom and I learn to deal with each new aspect of his dementia as it progresses. We avoid arguing with him and constantly correcting him. We try not to hurt his feelings and make him feel useful.
Furniture then loses his balance and goes to ER because he says he bumped his head. My mom and I go there, transport him back. My fear is that he will really hurt himself or worse hurt someone else. This man was one of the kindest, religious, helpful person I k ow (pretty boring overall). Meds calm him for a couple hours, then he's up and very 'busy'. Next wk we see a neurologist but I'm not even sure what questions to ask. Any input would be appreciated. Is there some type of scan that can assist in determining what Medici e may calm him down without making him so doped that it causes falls?
I do wish you luck and will keep you in our prayers anyway.