I found this article helpful.
https://www.agingcare.com/articles/caregiver-fix-it-mentality-leads-to-burnout-152629.htm
I realized, and I hope many of you do too, we can't "fix" old. As we seem to feel good about a living situation, a medical regime, a day to day routine, inevitably something else goes wrong. My question is, I still seem to constantly sit in an anxious state waiting for the "next thing." Do any of you have any suggestions for me on how to rid myself of that anxiety? I am an only child. My mother lives in AL in a retirement community 3 minutes away. I'm married and have two children (20 and 15). I have a full time job and am off in the summer.
My mom has taught me, through what she's experienced, what I DO NOT want to have happen to me or DH.
Poor planning, poor choices, letting one sib rob them of their savings and having the belief that SS would support them 'just fine'--when in fact, it barely covers the basics....losing their home due to said sibling...moving in with ANOTHER sibling--going on 24 years now...
Watching my sweet dad suffer the absolute indignity that is Parkinson's--and watching mother just slowly slumping into nothingness. Very little QOL and no interest in much of anything.
It doesn't cause me anxiety--b/c I know that there is little to nothing I can do for her to really help her. Aging is a personal thing. I can drive her to Bingo once a week. I can try to clean her apartment, I can spend about 1/2 an hour with her before she drives me nuts...and I can see how easily that can happen. Hope to not do it to my kids.
My YB has primary care of mother. I step in and out depending on how the winds are blowing (kinda like Mary Poppins)..she NEEDS me right now, so she's being super sweet and I find that kind of ironic.
My parents never came 'ahead' of my own kids. So, there's no 'guilt' there.
It just is what it is. Mom will likely live a few more years (she's 91) and she likely will wind up in a NH the next time she falls. We all just try to go with the flow.
Perhaps you are a far kinder person than I am. I have enough personal issues to deal with, I cannot climb up on mother's cross too. I care, but I can't care too much. It's unhealthy and I won't sacrifice my life for hers.
Maybe you need some talk therapy to get feeling cenetered about this, if it's keeping you upset or depressed. I did work out some issues about mom through therapy and it really helped me.
I am a worrier and can get myself anxious over what is in the mail that day, so being POA and Trustee of Trust for my bro could kick me into high gear in seconds. It isn't worth it. Most of the things you worry about won't happen, but OTHER THINGS will. So you need not to expend that energy and part of that is training yourself with "I will not think about this again today; I thought about it this morning. I can think about it again tomorrow morning" and then divert yourself. We can train our minds. Try meditation, and try deep breathing exercises. Good luck. I understand to the depth of the core of me!
1.Send lots of mail. Little cards and notes. Small packages, etc... even though you are a few minutes away.
2.Call right before her meals/activities... she will be occupied after the call is over.
3.Make in and out visits. Again, before an activity. Don’t go alone, bring another person to buffer.
4.Talk about the busyness of your children and their activities.
I struggle with anxiety. It’s a lot to handle. Being the only child of a declining parent is extremely hard. I never want my sons to experience the upset and stress I have been through. Warmly-Sunny
My mother was around 90 when dementia came calling. Initially it wasn't too bad, but I wanted "eyes" on her as I live 1.5 hours from where she lived. Hired aides 1hr/day weekdays only, with intent to increase time and duty as needed (it was only to check on her and make sure she took her meds from the dispenser we set up.) She thwarted that by refusing to let them in less than 2 months later. She was still mobile, could dress and eat (couldn't cook anymore, so boxed crap and frozen dinners) and was messing up finances so I took that over. We had to take her car as well - between hearing loss, Mac Deg and dementia, she was an accident waiting to happen (dents, dings, and a ruined tire and rim said NO MORE!) Just before we moved her to MC, she "bruised" her leg and developed cellulitis. She didn't even have enough sense to know how serious it was OR tell one of us. Thankfully she told her neighbor, who reported mom said she bruised her leg.
Although she had one big "step back" in time to about 40 years ago, she was holding her own there. Eventually she was using a rollator, then refused to stand/walk on her own, so wheelchair the last 6-8 months. Around Labor Day last year, she had a stroke. It impacted her right/dominant side. She was still pretty feisty (got mad they called EMTs and tried to kick the nurse!) It also impacted her swallowing and some speech, so she was losing weight and hospice finally came on board. Mid December the second stroke did the worst. She lasted another day after that.
I didn't worry too much, as she'd had a good long run. Of course any time a call from the facility came, it would pick up my BP a bit, but usually it was nothing. I suspect the high BP contributed to dementia for her and certainly the stroke (esp when she started refusing the meds, unable to swallow them. I did talk with the pharmacist and was told they could empty the contents into applesauce or ice cream - they are time-release, so any chewed would lost effectiveness, but most would likely go down and any we could get in was better than none!)
When those thoughts hit, take a deep breath and try to banish them. Often I would get a song stuck in my head and had to work to get it out. Same idea, think of something else, sing a song you like or listen to music you enjoy, just to get your mind onto something else. Tackle some task that's been deferred that requires some thought. Anything, just to get your mind off the "what ifs." You have two grown children - if you're like me and many others, we go through all that when raising them. You can try to protect others from certain things, but in many cases we just have to tackle what really happens, not the feared things, when they occur.
It is good that you've come to terms with end of life. That's a start. Now just work on getting those thoughts out of your head!
I was more anxious before mom and dad moved to AL - they were in IL and dad was falling - a lot - at the time we didn't know dad was having strokes in the balance center of his brain - no outward signs of the stroke). Dad was unhappy still being alive and I was afraid he was falling (not necessarily on purpose - but ... I sometimes wondered). When a retired nurse told dad he didn't have alzheimers sent us to have dad evaluated by neurologist to confirm the alzheimers and as a result of MRI found the evidence of his strokes.
The anxiety went down after they moved to AL - however dad continued to fall - but I knew he was safer than he had been.
Anxiety soared through the roof in Jan 2019 when found dad didn't have the "creeping crud" but was suffering CHF, AFIB, leaky valve and another circulatory issue. At 91 he decided not to pursue active treatment and went on hospice. Once things got sorted out and dad was on hospice - anxiety went down again. Yes he continued to fall - at least weekly - and I'd cringe whenever the phone rang early in the morning or late at night. While I knew he would continue to fall - I didn't stress out over it. I didn't stress over his end of life decision or when one afternoon, he went to sleep and never woke again.
While I always wondered what would happen next - I never worried much about it - and I'm a worrier and prone to stressing out by nature. However with my parents I actually wait for the shoe to drop before freaking out - which lasts until I can get my head around what's happening - luckily with dad (I believe his bones were essentially made of rubber - 2 of his early falls in IL resulted in a couple of cracked ribs and a compression fracture of his spine) the rest of the his fall essentially left him bumped and bruised - later falls were slides to ground as he was too weak to stand.
Spend the summer off - visiting your parents, but especially taking care of yourself. Have a spa day - or 2 or 3. Have long leisurely lunches, lose yourself in several good books.
Be good to yourself and good luck.
If you are OK physically, then your next appointment should be to a psychiatrist. He/She can get you a prescription for an anti-anxiety medication to help with your symptoms while you work with a therapist to find new coping strategies. If you commit to working with your therapist, you should find your anxiety soon decreasing enough that you do not need to rely on medications or a very small dose.
My first husband was in law enforcement. I used to worry every single day when he went to work. That he'd be injured or killed. Gave myself bleeding ulcers.
Then one night about 11:30 we got a call that one of the agents had been shot and for him to grab his long guns and get to the scene as they were actively searching for the shooters. I stayed up all night waiting to hear who got shot, if the other agents were okay, if my husband was going to be okay, etc. Worried myself into the hospital for 3 days because I kept throwing up blood (sorry this is so graphic). A lovely internist who treated me asked me, how did all your worrying change the outcome of the situation? I said it didn't, it couldn't. He said, then why do you worry? You are wasting energy and making yourself sick, AND YOU DIDN'T CHANGE A SINGLE THING!!!!
From that day on I stop myself from worrying.
I think we are programmed to worry as a sign of caring. But you can care for someone without worrying. So the next time you start to feel anxious, stop, breathe, and ask yourself if becoming anxious or worried can change the situation. Then let it go. It's only hard the first time. After that, it's a piece of cake. Big hugs and comforting energy to you.
I like Maple's suggestion about warding off worrying by reminding yourself it doesn't change the outcome of anything; it just makes US sick. I often think my mother will outlive ME b/c of how anxiety ridden she makes me. I'll be 64 next month. So I work on ridding myself of the anxiety producing comments and drama she creates every day. I fact check her statements with the staff at the MC, and realize that 90% of what she says is either a lie or a huge exaggeration. I highly suggest doing that, btw, if your mother is prone to telling you lots of ugly details about how much pain she's in or that she's 'dying' or the like. I often feel much better after making a fact checking phone call and hear that she's sitting in the activity room doing FINE.
Anyway, there's nothing WE can do about THEIR old age and infirmity anyway, so why make ourselves sick over it? Get out and about, keep your mind on productive activities, and tell yourself you'll cross the crisis bridge if and when you have to. In the meantime, you'll enjoy every moment of the life God gave you, your children, your husband, your job and your friends. In reality, we wind up worrying about things that never even happen!
Best of luck!
I like the concept of giving a few minutes day to the 'worry du jour' and then putting it away mentally.
We have so very little control over ANYTHING except for our own attitudes!
I came to mostly acceptance and lost the constant anxiety when I was able to accept Mom had entered a new stage of life that I could not change. There would be changes, often as quick as her fall, I could not anticipate nor change what would happen. I focused on providing as much good care and opportunities for enjoyable interludes as I could. Physically Mom loves a whirlpool bath and getting lotion applied so I made that part of her daily routine. Mom also has some dementia so I looked back over my childhood and her life for the things she enjoyed that she might still be able to do. Mom always loved music and sang most of the time when she was working during my childhood so I started singing with her. She remembers every song and hymn we ever sang and she loves our time spent singing. So while conversations about current events or books we have read don't work very well now, we can enjoy the time spent singing. I don't know when that next "changing" event is going to happen so I focus on today. I know that changing event is going to happen because Mom's declining health and eventual death is a certainty I cannot change - worrying about it before it happens will not change it.
It’s hard to retrain our brains if we fall into anxiety and depression. I had to see a therapist to help sort out my emotions regarding watching my mom deteriorate. As you know, there is no cure for Parkinson’s disease. The meds help to control the symptoms but it is a dreadful disease. My mom recently died at the age of 95. I miss her but I am so grateful that she is at peace now.
It is hard to relax and not think about the next fall, knowing that they are living in pain or experiencing tremors. My mom had some anxiety and depression. She was ready for her life to end so she could reunite with my father in the afterlife. We mourn the loss of our loved ones long before they die. They are merely existing, waiting for their time on this earth to end.
You are fortunate that your mom is in assisted living. I had my mom at home with me. Still, you feel the same emotions that I did. It’s hard, whether they are in a facility or at home.
Be glad that she is being well cared for at her facility. I’m sure that you are grateful for that. Try not to let it consume your every thought. I don’t think that your mom would want that unless she is a ‘self centered’ individual. You don’t sound like a chronic worrier to me. You will work through this situation. It’s a difficult and stressful situation. I have been there and I feel for you.
There are in person support groups for caregivers. I did attend one and I met very nice people in similar situations. The woman who started the group is a social worker and she was very helpful.
Online forums such as this forum helped me also. Take the advice that is applicable for you.
Being prepared helps too, such as knowing when to set up hospice care. Some people wait too long before starting on hospice. You can speak to a social worker to guide win the proper direction.
Wishing you peace during this difficult time in your life.
“Cast all your anxiety on him because he cares for you.” 1 Peter 5:7
Whenever anxious thoughts come to your mind immediately stop them and instead recite one or both of these scriptures and believe them in your heart. Do it each and every time and slowly watch your anxiety flee.
it is such a hard situation to be in. Myself I lived with my mother who had Alzheimer’s (but she didn’t believe anything was wrong other then a forgotten word here or there) and then had to do the gut wrenching thing of placing her in memory care for her safety and to hopefully improve her quality of life. Logically I knew it was the right thing to do but emotionally I was a wreck about it. When my mother was at home and when she was at memory care I constantly worried about her, like I was constantly in flight or fight mode readying myself for the next unexpected emergency. I was in therapy which helps and the main thing I would do that helped me (everyone is different so please don’t feel bad if what worked for me doesn’t work for you), what helped me would be sort of being in the now. What I mean by that was when I was living with her and I would wake up in the middle of the night in a panic over her health and safety and what may happen. I would check on her (make sure she was still home in her bed and was breathing) then when I saw that she was fine I would repeat to myself « I know that right now my mother is safe, I know she is alive, I know she is sleeping so she is alright » I would repeat that to myself especially when the anxiety would begin.
i would do the same when she was in memory care. After I called the residence and spoke to her I would repeat to myself « mom is doing well, she is alive, she is safe and she is well cared for. » this worked really well just after I spoke to her because I knew it was not likely that anything bad would’ve happened in the few minutes since I spoke to her. Sadly the anxiety would come back after an unknown amount of time but at least for those moments it helped to calm me with the logic of the now. If that makes sense?
oh and calming teas took the edge off a little (chamomile, valerian etc). But of course be careful drinking them until you know how you will respond to them. They can make some people really groggy and less alert and of course if you are allergic or taking certain meds please be careful. I am not a doctor so I don’t know if the teas are healthy for you.
it is so hard to live with the fear that you are currently going through. I have been there and oddly even though my mother passed away a few months ago I seem stuck in that anxiety, just waiting for that other shoe to drop. Please know you are not alone in your anticipatory anxiety and it is normal and shows how much you love your mother.
big hug for you. I am sorry I couldn’t provide more help for you.
Exercise covers a multitude of problems. If nothing else, you sleep better!
good luck!
Time now to take a deep breath. You have done your best and all that you can do. Does your anxiety come from a place that you have not done enough or from a place you are fearful of her dying and want to consciously or unconsciously prevent this? Who do you have that you can talk to, your spouse, a friend, a clergy person, her doctor or social worker Tell them your story -you need to be heard. You don’t want advice, just to be listened to.
Each time you feel anxious, remind yourself these are old tapes and you now are focusing on all the good you have done. You no longer have to live up to these false expectations. Blessings
Dr. Edward Smink - Soul of Caregiving
Sad it is but just keep visiting and put on a happy face, even tho it is depressing.
Praters your mom is in no pain because that just makes it worse.
I have a Dad 97 yrs old with Dementia and has a Cathiter and now monthly UTI's.
I pray that my Dad stops getting the urinary track infections because he's gone thru all the antibiotics that can help him and his body is now use to them and most do nothing to help him.
So, I now pray that God will just let him die in his sleep before going thru severe pain from kidneys non functioning.
I know he's lived a long and full life and he use to say he's going to live to be a 100 and that would be great as long as he's not in a lot of pain.
Prayers
You cannot prevent "the next bad thing" by worrying about it. If there is a new development, you and doctor and any care takers will address the new issue.
It is sad to watch our parents age and decline. They used to be our protectors in this world and now they are fading away and we feel left "out there" to fend for ourselves.
Enjoy the easy and "good" days and do what's needed on the bad days.
I could never get away from it, but I could hold the anxiety off by wearing "other hats". I watch my pre-school granddaughter 4 days a week, and her sister and cousins at various other times. I volunteer at church. Vacations helped too, since I trusted her situation.
1. Run daily
2. Eat Well
3. Drink lots of water
4. Prayer and Meditation......there is no easy solution.....
While you may not be a runner, exercise, move, stretech.
Move # 4 to # 1 spot: prayer and meditation.
Understand that (some of your) anxiety likely comes from not wanting to accept what is, and feeling grief/sadness. Understandably we want to push these feelings away although they do not go away, they come out in other ways (i.e., addictive behaviors, depression, anxiety, etc.)
I'd encourage you to start with conscious awareness and intention to:
1. be present; return to the present moment by moment. Observe colors, feelings, everything around you.
2. Do not 'try to' change how you feel / react to #1, the healing benefit is being aware without judgment or feeling you need to 'do anything' -
3. Start a gratitude list / journal. Find 1-2-3 or 5-10 "what you feel gratitude about" - even it if is hard to come up with anything. Once you get your mind around this concept, you will start to automatically 'look' for these things (positive qualities, or 'things' around that shift your feelings to neutral-positive.) If nothing comes to mind, look at a color of something, buy yourself a flower or two. Get a manicure.
4. We must train our selves to shift our 'patterns of behavior / thinking' - the more you do it, the easier it will work and become the new automatic behavior and response to what is.
5. Accept that life is both the yin and yang, the dark and the light. Be in both as you need to. Accept feelings (with curiosity). Do not push them away, even the anxiety. Be with it, with compassion, talk to it (this is Focusing; a skill I learned decades ago) * * * Gena
Here are a few things that have helped me manage my anxiety more:
1. PAUSE & BREATHE to calm the brain to be less reactive. I have made early mistakes by being too quick to react because I couldn't sit with the uncomfortable feeling of anxiety. I am getting more comfortable with the not knowing. Taking time to pause and remembering "I can handle hard things".
2. TAKE AN HONEST LOOK AT "WHAT YOU CAN CONTROL" so you can take small steps to feel less overwhelmed about it. For me, taking well thought out action helps to calm down my anxiety vs. keeping it rolling around in my head.
3. Simple concept but hard to adopt....RADICAL ACCEPTANCE of what you can not change. My mother has Alzheimer's Disease. It's been a perpetual process of loss and having to accept very tough things. By accepting "what is", I have been able to reduce my suffering. Like I said, easier said than done. I am a work in progress, but it definitely has gotten better with time.
So many great suggestions here on this forum. Good for you coming here to ask for help. Be gentle with yourself.
My brother & husband are very reassuring and helpful, as are the posts on this forum. Without all of these resources, things would be a LOT worse so thanks!
he wants to live alone so we settled on him getting a house seven houses away from us. We’re very fortunate he was able to buy the home. He won’t except Caregiver he won’t take Uber and he’s always angry at me. I try to make every day pleasant for him I will take him everywhere he needs to go and every doctors appointment. I make dinner every evening for him and bring him down to our home. My therapist just told me to stop trying to make him happy it won’t work. Easier said than done. I have constant guilt. I should be with him, I should be exercising him, I should be cleaning for him, the list goes on. Just keep feeling sad and guilty. I would hate to have my children feel this way about me. Hopefully I have made the arrangements ahead of time that will ease your burden. And I call it a burden because it’s a burden of guilt and sadness. Good luck to us in the days ahead.