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Many people with PD maintain their intelligence. Look at Michael J. Fox. To me he seems as intelligent as he ever was. He just has the movement disorder. There can be profound memory loss and dementia that goes with PD, however. I do not know what percentage of people get these effects or how long it takes (how deep into the disease). Thinking about this made me realize how little I actually understand about the disease.
Certainly not everyone who has Parkinson's will develop dementia. Having PD does not confer any immunity to dementia and a person with PD could develop any kind of dementia if the circumstances are right, just like anyone else. There is a specific kind of dementia closely associated with PD, called Parkinson's Disease with Dementia (PDD). If the same disease manifests itself with the dementia first and the Parkinson symptoms later it is called Dementia with Lewy Bodies. Together these two kinds of dementia are called Lewy Body Dementia. They both involve unnatural deposits ("bodies") of protein in the brain, first identified by Frederick Lewy in the autopsies of PD patients.
I think you would do well to learn the symptoms of Lewy Body Dementia so you would recognize them early in your mother. LBD responds better to treatment than many other kinds of dementia and it is valuable to start treatment early. Her neurologist can probably give you some literature. Another awesome source in the Lewy Body Dementia Association website.
I'm not trying to suggest that you worry trouble by looking too far ahead. Your mom may never develop any kind of dementia. I just suggest it can be useful to know what to look for.
My Mother was Diagnosed with PD two years ago although I think they missed it a year even earlier. She had many of the symptoms prior to her diagnosis. Now along with the PD she has Dementia but not LBD this was ruled out. She tends to forget silly things and at times becomes frustrated. She was placed on a low dose of a memory medication that will not affect the PD medication. Her Neurologist has explained to me that PD and Dementia go hand in hand and that a huge percentage of patients who have PD will get some form of Dementia if not treated early enough. My Mother moved in with my Husband, Children and I over two years ago and thankfully I had experience with the Disease to notice her symptoms had become worse. At the time she was on a medication for PD that was fighting another medicine for her bladder she was on. The two medications were killing or eating her brain away. Thankfully I was able to get her Medical help quickly or My Mom would not be wtih us today. So whatever medications your loved one is on make CERTAIN it will go well with the PD medication. I never realized how difficult it would be taking care of 3 small children and my Mom who is fighting this horrible disease. Her confusion, frustration and 'tantrum' type behaviors get hard at times but I would not have it any other way. I love her and only want the best for her. My children all understand she is fighting a nasty Disease that may make her forget, get upset or talk 'silly' sometimes and sure they get frustrated at times as well but together we do what we can for her. Thank you all for the wonderful posts here. It is so helpful knowing I'm no longer alone in this quest to keep my Mom happy, and alive.
I forgot to add that I read on the site that memory loss is not as it would be in a dementia such as Alz, that there are other symptoms, e.g. confusion and visual hallucinations. Jeanne, I know you know a lot more about LBD than most of us. In the little that I read I learned many new things.
Jeanne, I never knew the connection between Parkinson's and Lewy body dementia. I read a bit about it at the LBD site. Thank you for writing this. I had thought them two separate diseases.
By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington.
Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services.
APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid.
We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour.
APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
IV. No Obligation or Commitment.
You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints.
Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights.
APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.
I agree that:
A.
I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information").
B.
APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink.
C.
APFM may send all communications to me electronically via e-mail or by access to an APFM web site.
D.
If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records.
E.
This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year.
F.
You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
I think you would do well to learn the symptoms of Lewy Body Dementia so you would recognize them early in your mother. LBD responds better to treatment than many other kinds of dementia and it is valuable to start treatment early. Her neurologist can probably give you some literature. Another awesome source in the Lewy Body Dementia Association website.
I'm not trying to suggest that you worry trouble by looking too far ahead. Your mom may never develop any kind of dementia. I just suggest it can be useful to know what to look for.
Best wishes to you and to your mom.